It's late and I should be in bed, but Elijah is scheduled to be given some medicine every 6 hours, and midnight is the next dose so I have to stay up and wait for it. Chris went to bed a little earlier since he's in charge of the 6am dose. I definitely got the better end of that deal :-)
So I figured I should use this waiting time to give a little update on how things are going for our little family. Since we first got home Elijah has continued to improve. He's been walking around a little today without any support, really starting to build up to where he was before all this happened. And it's been interesting to see how as he builds up his strength and is able to get around on his own more, he is getting less and less cranky. So today was a great day! He played and laughed and chased us and let us chase him and just had a great time :-)
He's been sleeping really well too, which surprises me. I expected him to be on a crazy sleep schedule after the hospital, but he's fallen right back into his regular patterns. Although he has been wanting to wake up around 6am instead of 7am, which is way too early for me, but Chris usually gets him at that point (at least until next week when Chris starts working).
We have an appt for Elijah tomorrow to check up with his regular pediatrician. Hopefully we will get a good report. I know everything about his breathing has been great, he hasn't even sounded congested much at all since we've been home. The only small concern I have at this point is the bruising he has on his thigh. I don't know if I've mentioned it before, but he originally had a line in his left leg and they had to take it out because his leg was getting really swollen and there were some clotting problems. Since then there has been a terrible bruise that covers the top of his inner thigh and the entire left side of his genitals, it looks really bad. I thought it was getting better at first but towards the end of our hospital stay I thought it looked worse. We pointed it out to several doctors several times and all they told us was to keep an eye on it. So they don't seem too concerned, but it's clear to me that it has not gotten better. So if you think of that, please say a little prayer. It doesn't seem to bother Elijah at all, but another complication is the last thing we need. Hopefully his pediatrician will have something to say about it tomorrow.
I feel like I have so much more to say, but I don't even know where to begin. Chris and I are just continually amazed when we think about everything that has happened and how God has been so faithful to us. We just can't get over how awesome our God is! We are so grateful for the miracle He worked in Elijah's life! We are so blessed by the faithfulness and the love of His people!
I just have to say one more thing tonight. At the most frightening point of Elijah's struggle, when he was coding and Chris and I were in the room with all the doctors and nurses surrounding him, when we came so close to losing him, I have never felt more love, more desperation for my child... and what amazes me most is that the way I felt in that moment doesn't even compare to the way that God feels about us. I just can't get over that. How wonderful it is to be so loved. Amazing...
That's all for tonight, I'm going to go give my precious baby his midnight dose of drugs and put myself to bed! Goodnight everyone!
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